tag:blogger.com,1999:blog-14587234511113866762024-02-08T08:28:31.135-08:00A Special Little GirlPaula&Miahttp://www.blogger.com/profile/04034220549884849780noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-1458723451111386676.post-48711512192757096482008-01-01T06:55:00.000-08:002008-01-01T07:02:14.284-08:00Happy New Year Everyone<span style="color:#cc33cc;">Happy New Year </span><br /><span style="color:#cc33cc;"></span><br /><span style="color:#cc33cc;">Well hope everyone is OK and recovering well from their new years celebrations last night.</span><br /><span style="color:#cc33cc;">I went to a party with my mummy, daddy and big sister Amy. They were all playing on the <span class="blsp-spelling-error" id="SPELLING_ERROR_0">Wii</span> whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at <span class="blsp-spelling-error" id="SPELLING_ERROR_1">middnight</span> and mummy and daddy came up to see me. Mummy had a little cry like she does every year and slobbered all over me. Yuck!</span><br /><span style="color:#cc33cc;"></span><br /><span style="color:#cc33cc;">Anyway, were going to my grandmas for dinner now (Not that I can eat anything with being peg fed) but its nice to all get together.</span><br /><span style="color:#cc33cc;">Happy New Year to all my friends.</span><br /><span style="color:#cc33cc;">Will Write Soon</span><br /><span style="color:#cc33cc;">Mia</span><br /><span style="color:#cc33cc;">x</span>Paula&Miahttp://www.blogger.com/profile/04034220549884849780noreply@blogger.com1tag:blogger.com,1999:blog-1458723451111386676.post-21908306673792355972007-12-29T12:13:00.000-08:002007-12-30T08:13:47.773-08:00Our First Post<span style="font-family:courier new;font-size:85%;color:#ff6666;">Well Hello All, </span><br /><span style="font-family:courier new;font-size:85%;color:#ff6666;"></span><br /><span style="font-family:courier new;font-size:85%;color:#ff6666;">This is our first ever posting, my mummy is typing this up on my behalf because <span class="blsp-spelling-error" id="SPELLING_ERROR_0">that's</span> what mums are for, especially mine and if you are a special little girl or boy like me chances are you too will be blessed with a special someone who cares for you too.</span><br /><span style="font-family:Courier New;font-size:85%;color:#ff6666;"></span><br /><span style="font-family:Courier New;font-size:85%;color:#ff6666;">Not too sure what we post on these things but will give you a brief rundown, I am a 4 year old little girl with a very very rare genetic disorder called <span class="blsp-spelling-error" id="SPELLING_ERROR_1">CDKL</span>5 (a <span class="blsp-spelling-error" id="SPELLING_ERROR_2">Retts</span> variant). On the 9<span class="blsp-spelling-error" id="SPELLING_ERROR_3">th</span> September 2005 I was diagnosed with this and at that time was only the 2 child in England with this nasty <span class="blsp-spelling-error" id="SPELLING_ERROR_4">neurological</span> disorder and only the 17<span class="blsp-spelling-error" id="SPELLING_ERROR_5">th</span> in the world. Anyway for the whole story you can visit my website: <a href="http://www.mialoudon.co.uk/">http://www.mialoudon.co.uk/</a>.</span><br /><span style="font-family:Courier New;font-size:85%;color:#ff6666;"></span><br /><span style="font-family:Courier New;font-size:85%;color:#ff6666;">At present I am a little poorly with a chest infection and have not really been in the mood for C<span class="blsp-spelling-error" id="SPELLING_ERROR_6">hristmas</span>. Although my big sister Amy has had a fabulous time and helped me to open up all my presents on C<span class="blsp-spelling-error" id="SPELLING_ERROR_7">hristmas</span> day (which she really enjoyed doing). I will post again very soon.. Mia x</span>Paula&Miahttp://www.blogger.com/profile/04034220549884849780noreply@blogger.com0