Tuesday, 1 January 2008

Happy New Year Everyone

Happy New Year

Well hope everyone is OK and recovering well from their new years celebrations last night.
I went to a party with my mummy, daddy and big sister Amy. They were all playing on the Wii whilst I was watching. We stayed over at my auntie and uncles so mummy put me to bed at 10pm which is late for me. Mummy brought my projector which was nice so I could chill and feel at home. I was awake at middnight and mummy and daddy came up to see me. Mummy had a little cry like she does every year and slobbered all over me. Yuck!

Anyway, were going to my grandmas for dinner now (Not that I can eat anything with being peg fed) but its nice to all get together.
Happy New Year to all my friends.
Will Write Soon

Saturday, 29 December 2007

Our First Post

Well Hello All,

This is our first ever posting, my mummy is typing this up on my behalf because that's what mums are for, especially mine and if you are a special little girl or boy like me chances are you too will be blessed with a special someone who cares for you too.

Not too sure what we post on these things but will give you a brief rundown, I am a 4 year old little girl with a very very rare genetic disorder called CDKL5 (a Retts variant). On the 9th September 2005 I was diagnosed with this and at that time was only the 2 child in England with this nasty neurological disorder and only the 17th in the world. Anyway for the whole story you can visit my website: http://www.mialoudon.co.uk/.

At present I am a little poorly with a chest infection and have not really been in the mood for Christmas. Although my big sister Amy has had a fabulous time and helped me to open up all my presents on Christmas day (which she really enjoyed doing). I will post again very soon.. Mia x